Sickle Cell Consortium Announces 2026 Leadership Summit and Strategic Partnership with Sickle Cell Disease Coalition to Host Unified Action Forum

Sickle Cell Consortium Announces 2026 Leadership Summit and Strategic Partnership with Sickle Cell

Disease Coalition to Host Unified Action Forum

March 25, 2026, Atlanta, GA, — The Sickle Cell Consortium is proud to announce its 10th Annual Leadership

Summit, taking place April 7–11, 2026, followed by a landmark partnership with the Sickle Cell Disease Coalition

(SCDC) to co-host the Unified Action Forum (UAF) on April 11–12, 2026 at The Westin Atlanta Airport, 4736 Best

Road, Atlanta, Georgia.

Together, these events will host a diverse group of stakeholders, including patients, caregivers, community-based

organizations, clinicians, researchers, industry leaders, and policymakers, for an unprecedented week of

collaboration, strategy, and action in the sickle cell disease (SCD) space.

Celebrating its 10th anniversary under the theme “A Legacy of Leadership,” the Leadership Summit has become

a cornerstone convening for the sickle cell community. The Summit provides a platform for:

● Advancing patient-centered solutions

● Strengthening community-based organizations

● Driving cross-sector collaboration

● Elevating the voices of individuals living with sickle cell disease

Participants will engage in dynamic sessions, leadership development opportunities, and strategic discussions

focused on addressing the most pressing challenges in SCD. The 10th Annual Leadership Summit would not be

possible without the generous support of our sponsors. We extend our deepest thanks to Pfizer

Pharmaceuticals for serving as this year’s Impact Sponsor. Your continued partnership helps us empower the

sickle cell community, elevate warrior voices, and drive lasting change. Together, we are building a stronger,

more unified future, one leader at a time.

Unified Action Forum: Aligning National Efforts

Building on the momentum of the Summit, the Unified Action Forum (April 11–12), hosted in partnership with the

Sickle Cell Disease Coalition (SCDC), will serve as a national convening designed to align priorities and

accelerate coordinated action across the ecosystem.

The Forum will focus on:

● Identifying shared goals across stakeholders

● Aligning strategies to address systemic barriers

● Strengthening collaboration between community, clinical, research, and industry partners

● Advancing equitable and sustainable solutions for individuals living with SCD

Contact: Alexandria Green-Jones

info@agmediaagency.com

FOR IMMEDIATE RELEASE:

This partnership represents a significant step toward greater unity and collective impact in the fight against sickle

cell disease. By intentionally aligning these two convenings, the Sickle Cell Consortium and SCDC are creating a

continuous, high-impact experience, moving from leadership development and community engagement to

national-level strategy and action.

“This moment represents more than a convening; it represents alignment,” said Dr. Lakiea J. Bailey, Founder and

Executive Director of the Sickle Cell Consortium. “By bringing together leadership, community voice, and national

strategy in one coordinated effort, we are creating space for real progress and collective impact.”

Registration and Additional Information

For more information about the 2026 Leadership Summit, visit:

https://www.sicklecellevents.org/2026leadershipsummit

For details about the Unified Action Forum, visit:

https://www.sicklecellevents.org/uafconvening

About the Sickle Cell Consortium

The Sickle Cell Consortium is a national organization dedicated to unifying the sickle cell community, strengthening community-based

organizations, and advancing patient-centered advocacy, education, and research engagement.

About the Sickle Cell Disease Coalition

The Sickle Cell Disease Coalition is a collective of organizations committed to improving the lives of individuals affected by sickle cell disease

through coordinated education, awareness, and systems-level change.